IRDiRC – International Rare Diseases Research Consortium

New IRDIRC Recognized Resource: The Model Organism Aggregated Resources for Rare Variant ExpLoration (MARRVEL)

MARRVEL (Model organism Aggregated Resources for Rare Variant ExpLoration) is a search engine that … Read more
IRDiRC’s State of Play of research report

The International Rare Diseases Research Consortium (IRDiRC) releases today the current state of … Read more
Dr Lucia Monaco interview on Rare Diseases

The Chair of the Consortium Assembly, Dr Lucia Monaco, has been recently interviewed … Read more
Task Force Opening: Clinical Research Networks for Rare Diseases

The Interdisciplinary Scientific Committee (ISC) is establishing a Task Force on Clinical Research … Read more
Durhane Wong Rieger elected as Chair of the Patient Advocacy Constituent Committee

We are pleased to announce the election of Dr Durhane Wong Rieger, President & CEO of the … Read more