for Executive Committee, Scientific Committees, and Working Groups

The IRDiRC Shenzhen Conference is now highlighted on the homepage of the IRDiRC website. The conference website has been launched and registration will open before the end of May. 


IRDiRC new documents 

  •  Therapies Scientific Committee: report of the meeting held on March 19, 2014, in Paris, France.
  • Working Group on Biomarkers for disease progression and therapy response: report of the teleconference held on April 11, 2014. 


News published on the website

  • A case for conducting genomic and clinical data sharing within the human rights framework.
  • The CLARITY Challenge: a novel approach towards standardizing clinical genome sequencing


IRDiRC related calls

  • The Joint Programme – Neurodegenerative Disease Research (JPND) in collaboration with the French National Research Agency (ANR) has launched a rapid action call to establish working groups to enhance the use of existing longitudinal cohort studies for neurodegenerative disease research, in the context of JPND.


Website updates

  • IRDiRC PowerPoint, poster and flyer are now available on the private website for the Executive Committee members.


New lists of research projects funded by IRDiRC members


Other news

  • Lilian Lau, PhD, has joined the IRDiRC Scientific Secretariat as project manager. 

Sophie Höhn, Communication manager, IRDiRC Scientific Secretariat IRDiRC, Plateforme Maladies Rares / Rare Disease Platform, 96 rue Didot, 75014 PARIS, FRANCE, Tel: +33 1 56 53 81 37, Fax: +33 1 56 53 81 38