for Executive Committee, Scientific Committees, and Working Groups

Registration for the IRDiRC Shenzhen Conference is now open!                   Please find the communication letter to be used for dissemination here. 

IRDiRC new documents 

Upcoming IRDiRC meetings

  • July 3, 2014: Teleconference of the IRDiRC Working Group on Ethics and governance.
  •  July 23, 2014:  Teleconference of the IRDiRC Working Group on Chemically-derived products including repurposing.
  • November 6, 2014: IRDiRC Executive Committee meeting – Shenzhen, China.

News published on the website

IRDiRC related calls

Website updates

New selected reports and policy documents

Other news

  • At the ECRD 2014, a video was presented during the plenary session introducing the ever evolving landscape of rare diseases.  

Sophie Höhn, Communication manager, IRDiRC Scientific Secretariat IRDiRC, Plateforme Maladies Rares / Rare Disease Platform, 96 rue Didot, 75014 PARIS, FRANCE, Tel: +33 1 56 53 81 37, Fax: +33 1 56 53 81 38