for Executive Committee, Scientific Committees, and Working Groups

IRDiRC new documents 

  • The Working Groups activities section has been updated with the addition of the reports of seven of the working groups’ first teleconferences and of two of the working groups’ second teleconferences.                                

     Read the reports here


New documents from external sources

  •  Interview with the chair of IRDiRC made by Total Orphan Drugs.

     Read the interview here 

  • Article on the project ODIN – ORCID and DataCite Interoperability Network.

     Read the article here 

  • Change is in the air for sequencing grants.

     Read the article here 

  • Coordination of Rare Diseases at Sanford (CoRDS) – interview with Liz Donohue.

     Read the interview here 

  • Standardizing bioresources citation in journal articles: workshop highlights.

     Read the article here

  • Open Info Day – Horizon 2020 ‘Health, demographic change and wellbeing’ – first funding round.

     Read about the event here 


Website update

  • The private IRDiRC website is now available for IRDiRC Executive Committee, Scientific Committees, Working Groups and Scientific Secretariat.

     Access to the private IRDiRC website here

  • IRDiRC related calls have been updated. 

     Have a look at the new calls here 

  • A search engine has been installed on the website.


New lists of research project

  • A new list of projects funded by IRDiRC members has been added: the Netherlands Organisation for Health Research and Development (Netherlands). 

     Find the list here 


Other news

  • IRDiRC is pleased to welcome two new members: the Academy of Finland and the Children's New Hospitals Management Group of Georgia.

Sophie Höhn, Communication manager, IRDiRC Scientific Secretariat IRDiRC, Plateforme Maladies Rares / Rare Disease Platform, 96 rue Didot, 75014 PARIS, FRANCE, Tel: +33 1 56 53 81 37, Fax: +33 1 56 53 81 38