Become a Member

The International Rare Diseases Research Consortium (IRDiRC) was launched in 2011 to accelerate medical breakthroughs for people affected by rare diseases.

Benefits of the consortium membership include:

  • Access to an international network of stakeholders active in the field of rare disease
  • Representation on the Consortium Assembly and Constituent Committees
  • Participation in a Scientific Committee and/or Task Force, according to expertise
  • Involvement in setting out policies, guidelines, and recommendations
  • Information sharing on the State-of-Play in rare diseases research
  • Skill and expertise sharing to advance translational, pre-clinical, and clinical research

Ultimately, all this will help:

  • Avoid duplication of effort through co-operative discussion
  • Cost saving through knowledge and resource sharing
  • Accelerate diagnoses and therapy development for rare diseases
  • Advance the care and the cure of rare disease patients
  • Maximise the impact of investment in rare diseases research