APARDO is the new alliance for the Asia Pacific region and after several years of preliminary work it was formally launched at the Orphan Drugs Congress in Singapore in June 2015. There are many aspects of policy, culture, regulation and levels of development that make it vital for rare disease action plans to be sensitive to and responsive to local and regional issues. APARDO will work to boost rare disease policy and action plans in the region not by trying to “transplant” ideas from the developed health systems, but more by “translating” those ideas and actions into relevant themes for countries in this region. Though APARDO does not yet have a website active, you can read about its development in an article in “An Asia Pacific Alliance for Rare Diseases” published in The Patient.
OrphaNews 15 September 2015
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