Education makes man a ideal thinker. Instruction for all comes with a great number of benefits which are both financial and personal. It has an immediate impact on a child’s reproductive health hence there’s requirement for supply of quality basic education for children, youth as well as adults. It is but one of those areas that decisively marches towards bigger and better chances for everybody who would like to make their degree without needing to breathe or even leave the house. [Read more…]
We are pleased to announce the election of Dr Durhane Wong Rieger, President & CEO of the Canadian Organization for Rare Disorders (CORD), as the Chair of the Patient Advocacy Constituent Committee (PACC).
Durhane Wong Rieger, PhD, is the President & CEO of the Canadian Organization for Rare Disorders (CORD). She is also the President & CEO of the Institute for Optimizing Health Outcomes (Canada), Chair of the Consumer Advocare Network and Chair of Canadian Heart Patient Alliance.
Additionally, Dr Durhane is involved in many international projects on rare diseases. She serves as Chair of the Council for Rare Disease International, member of the Steering Committee of the UN NGO Committee for Rare Diseases, Board member of Asia Pacific Rare Disease International, member of the Editorial Board of The Patient- Patient Centred Outcomes Research, member of the Global Commission to End the Diagnosis Odyssey for Rare Diseases and member of Health Technology Assessment International Patient /Citizen Involvement Interest Group.
She takes over the Chair position from Sharon Terry, President and CEO of Genetic Alliance, who continues as member of IRDiRC’s Patient Advocacy Constituent Committee.
The Diagnostic Scientific Committee (DSC) is establishing a Task Force on to address barriers to the diagnosis of rare diseases for Indigenous peoples, so as to help address critical areas that will need to be served if IRDiRC Goal 1 is to be met. The Indigenous Population Task Force will bring together the community addressing this challenge to identify priority areas and share best practices regarding current and future approaches in need of development to support improved, more equitable and culturally secure rare diseases diagnosis for Indigenous populations. This includes, but is not limited to those living in rural and remote areas.
Therefore, the DSC is specifically looking for members to populate this Task Force. Please see here for the full description of the experts profiles and the application procedure.