Posts by Lilian Lau

RD-Connect: An integrated platform co...

    April 11, 2013 RD-Connect is a six year project funded by the European Commission to develop an integrated research platform in which complete clinical profiles are combined with –omics data and sample availability for rare disease research. Launched in January 2013, the project has for objectives to: 1) harmonize and develop common standards […]

EURORDIS awards exceptional figures i...

April 11, 2013 This year, at the 2nd Annual Black Pearl Gala dinner, organized by EURORDIS in Brussels at the Plaza Hotel, awards for “outstanding accomplishments in the field of rare diseases” were presented to stalwarts in the field of rare disease. These awards were presented on the eve of the 6th Rare Disease Day. […]