Research Projects Funded by IRDiRC Members

Number of new research projects funded by IRDiRC funding bodies

The main objective of IRDiRC is to accelerate medical breakthroughs for people affected by rare diseases by establishing a network of research funders. These funding bodies are sponsoring a number of research projects, usually funded for a period between two to five years.

The list below represents the number of new research projects funded by IRDiRC funding bodies and is produced using self-declared agencies data from 2010 onward. It may not reflect the total number of new research projects funded by all IRDiRC funding bodies.

CountryOrganization201020112012201320142015TOTAL
AustraliaWestern Australian Department of Health (WA Health) 188 2937
Canada Canadian Institutes for Health Research (CIHR)23 45301246156
Canada Genome Canada1020003
China Beijing Genomics Institute (BGI) NA NANANANANA0
China Chines Rare Disease Consortium (CRDC) NA NANANANANA0
Europe E-RARE Consortium 16 111212141984
EU European Commission (EC) 31 1737293019163
Finland Academy of Finland16 91146652
France Agence Nationale de la Recherche (ANR) 30 2516203420145
France French Foundation for Rare Diseases (Fondation maladies rares)- -50687132221
France French Muscular Dystrophy Association (AFM) 16 2110244129
Germany Federal Ministry of Education and Research (BMBF)16 -5-21
Georgia Children's New Hospitals Management Group (BAC) NA NANANANANA0
ItalyIstituto Superiore di Sanità (ISS)NA NANANANANA0
Italy Telethon Foundation4882 62435846339
Korea Korea National Institute of Health11 NANA2
Netherlands The Netherlands Organisation for Health Research and Development (ZonMw)NA NA257
Spain National Institute of Health Carlos III (ISC III) 45 414654416233
UK National Institute for Health Research (NIHR) - -473216
USAOffice of Orphan Products Development, Food and Drug Administration (OOPD, FDA) 15 5714131872
USA National Cancer Institute (NCI, NIH) 3884854803016142268
USA National Eye Institute (NEI, NIH) 1527 22192421128
USANational Human Genome Research Institute (NHGRI, NIH)0 63104326
USANational Center for Advancing Translational Sciences (NCATS, NIH)- 1 8941032
USA National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS, NIH)464862355340284
USA National Institute of Child Health and Human Development (NICHD, NIH) 494663456143307
USANational Institute of Neurological Disorders and Stroke (NINDS, NIH) 172 2062012011802201180
USA Sanford Research33 006

NA: data not available
– : not applicable

List of research projects funded by IRDiRC members

The list below represents the list of research projects funded by IRDiRC members. To access the list of projects click on the name of the institution. These research projects are also accessible from the Orphanet website. They can be queried by disease/gene, category, institution/laboratory, professional, sponsor/funding body and partnership category.

Academy-of-Finland

Academy of Finland

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Agence National de la Recherche (ANR)

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Canadian Institutes for Health Research (CIHR)

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E-Rare, European Union

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European Commission, European Union

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Federal Ministry of Education and Research (BMBF), Germany

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French Foundation for Rare Diseases, France

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French Muscular Dystrophy Association (AFM), France

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Genome Canada, Canada

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Istituto Superiore de Sanita
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Korea National Institute of Health

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National Institute of Health Carlos III (Instituto de Salud Carlos III / ISCIII), Spain

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National Institute for Health Research, UK

Eunice-Kennedy-Shriver-National-Institute-of-Child-Health-and-Human-Development.pngEunice Kennedy Shriver National Institute of Child Health and Human Development (NIH), USA

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National Cancer Institute (NIH), USA

NCATS.pngNational Center for Advancing Translational Sciences (NIH), USA

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National Eye Institute (NIH), USA

National-Institute-of-Arthritis-and-Musculoskeletal-and-skin-diseases.pngNational Institute of Arthritis and Musculoskeletal and Skin Diseases (NIH), USA

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National Institute of Neurological Disorders and Stroke (NIH), USA

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National Human Genome Research Institute (NIH), USA

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Sanford Research, USA

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Telethon Foundation, Italy

zonmw.gifThe Netherlands Organisation for Health Research and Development, Netherlands

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Western Australian Department of Health, Australia