The experts of the European Working Group for Value Assessment and Funding Processes in Rare Diseases have drafted eight Principles which aim to provide a qualitative toolkit for European decision-makers involved in the value assessment and funding processes of OMPs. Their ambition is to facilitate patient access to these products by fostering greater uniformity and consistency in the methods used to make reimbursement and funding decisions for OMPs.
The European Working Group is composed of 10 individuals drawn from different disciplines – physicians, patient advocates, academic health economists, regulators and politicians – and from different European countries. The unifying characteristic is an interest or expertise in issues relating to rare diseases, OMPs and value assessment. The group is led by Professor Lieven Annemans from Belgium.
To ensure that the Principles are relevant and applicable at country level systems, the group is seeking wider feedback on their draft document. Anyone with an interest or expertise in OMPs Value assessment is invited to comment on the document until 22nd of April 2016.
Please click on the following link to complete the survey and provide your feedback on the document: https://www.surveymonkey.com/r/G5YHR8W