The members of IRDiRC’s Task Force on Data Mining and Repurposing have drafted recommendations resulted from the Task Force’s workshop in November 2016. This workshop’s discussion included perspectives from different experts and stakeholders in rare disease drug development, including researchers, commercial development partners, regulators, and patient organizations. These consensus recommendations reflect the shared view that strategic investments in research will accelerate the development of new therapies for rare disease patients.
Recommendations were made concerning data mining and repurposing research infrastructure needs, in particular on improving the capture and sharing of patient data, the better integration of existing research data, increasing experimental and clinical testing capacity, and nurturing rare disease research and development expertise. Recommendations were also made on increasing repurposing and data-mining opportunities, emphasizing on the identification of more repurposing candidates, and on expanding strategic business models for repurposing development.
The Task Force is now seeking wider feedback on their recommendations. Anyone with an interest or expertise in data mining and repurposing is invited to comment on the document until April 21st, 2017. Feedback should be send to the IRDiRC Scientific Secretariat (contact [at] irdirc.org).