The 10th IRDiRC Executive Committee meeting was held on June 16, 2014 by teleconference.
The purpose of this teleconference was to discuss in general terms how to potentially fund proposals from the Scientific Committees, and then to consider 4 following proposals. A brief update on the Shenzhen conference was also given.
Find the report here.
During that meeting, the following documents were discussed:
- DSC proposal: develop resources for community development of the Human Phenotype Ontology
- DSC proposal: enabling rare disease gene discovery – Matchmaker Exchange
- ISC proposal: develop model consent clauses for rare disease research
- ISC proposal: develop a Data Standards Clearinghouse for Rare Diseases