EU Malta Presidency Conference and Parallel Session on Rare Diseases

EU Malta Presidency Conference and Parallel Session on Rare Diseases
On March 20-21, 2017, a conference was held for the EU Malta Presidency. In this conference, a session took place on integration of healthcare and research on rare diseases. The ultimate goal of this session was to establish a long-awaited single pipeline covering research, tools and clinics leading to optimization and exploitation of results [...]

Open for public consultation: recommendations from the Data Mining and Repurposing Task Force

Open for public consultation: recommendations from the Data Mining and Repurposing Task Force
The members of IRDiRC’s Task Force on Data Mining and Repurposing have drafted recommendations resulted from the Task Force’s workshop in November 2016. This workshop’s discussion included perspectives from different experts and stakeholders in rare disease drug development, including researchers, commercial development part [...]

IRDiRC welcomes the Loulou Foundation and Recursion Pharmaceuticals as new members

IRDiRC welcomes the Loulou Foundation and Recursion Pharmaceuticals as new members
The Loulou Foundation, a private, non-profit UK foundation dedicated to advancing research into the understanding and development of therapeutics for CDKL5 deficiency disorder, has joined IRDiRC as new funding agency. Next to funding research, the Loulou Foundation places a high priority on partnering with the biopharma industry. Recursion Ph [...]

Chairs elected for the IRDiRC Constituent Committees

Chairs elected for the IRDiRC Constituent Committees
In August 2016, three Constituent Committees were created, a Funders Constituent Committee, Companies Constituent Committee and a Patient Advocates Constituent Committee, in order to better coordinate, enhance information exchange, identify common goals, and advance towards IRDiRC objectives within the different constituent groups. Dr Daria J [...]

Petra Kaufmann elected as new Chair of the Interdisciplinary Scientific Committee

Petra Kaufmann elected as new Chair of the Interdisciplinary Scientific Committee
IRDiRC proudly announces that Dr Petra Kaufmann has been elected as Chair of the Interdisciplinary Scientific Committee (ISC), where she will serve with the newly elected Vice Chair Dr Domenica Taruscio. Dr Kaufmann is the Director of the Office of Rare Diseases Research (ORDR), and Director of the Division of Clinical Innovation (DCI) at the [...]

IRDiRC Consortium Assembly and Scientific Committee meeting 2017

IRDiRC Consortium Assembly and Scientific Committee meeting 2017
In mid-February, IRDiRC Scientific Committees and IRDiRC Consortium Assembly meeting was held in Paris, France, prior to the 3rd IRDiRC Conference. These meetings had a dual aim: to discuss the progress that the Consortium Assembly, Scientific Committees, Task Forces and Constituent Committees have made over the past year, and also to work to [...]