Reports & Guidelines

In Report & Guidelines several official documents can be found. Firstly IRDiRC policies and guidelines is a set of policies and guidelines that the IRDiRC members agree to follow as well as the recommendations from the Scientific Committees. The State-of-Play report is an annual report, prepared by the IRDiRC Scientific Secretariat, that gives an overview of rare disease research and activities worldwide. In Guidelines and Standard guidelines from partner institutions for researchers that IRDiRC supports can be found. In reports are a number of published documents reporting on rare disease research. The part finishes with recommendations to agencies and researchers that IRDiRC agrees with.