Recommendations to Agencies

OECD recommendation on the governance of clinical trials

OECD“The 2012 OECD Recommendation on the Governance of Clinical Trials is a policy instrument that defines a new framework for better oversight of clinical trials. The accompanying Explanatory Memorandum contains information about the background and the context of the Recommendation, and provides concrete information for facilitating the implementation of the principles contained in the Recommendation.”

Read the Recommendation

Data sharing in large research consortia: experiences and recommendations from ENGAGE

Engage“This paper provides results from a survey conducted in the European Network for Genetic and Genomic Epidemiology (ENGAGE) that collected information from its participating institutions about their data-sharing experiences. The questionnaire queried about potential hurdles to data sharing, concerns about data sharing, lessons learned and recommendations for future collaborations.”

Read the recommendations

Commission expert group on Rare Diseases: Recommendations to support the incorporation of rare diseases into social services and policies

cegrd-recommendations“These recommendations mainly focus on empowering health services’ attempt to facilitate integrated care provision to enable them to play the role they need to play in supporting the incorporation of Rare Diseases (RD) specificities into mainstream social and support services, within a holistic and person-centered approach and a human rights perspective.”

Read the recommendations