On this page, IRDiRC’ annual State-of-Play report can be found. This report aims to inform stakeholders at large of developments in the field of rare diseases research in order to support decisions of policy makers and research funders, as well as informed the rare diseases community at large of the achievements and of observed trends which shape the future of research and development for rare diseases.
It is based on a systematic survey of published articles, in scientific journals and press releases. This report does not cover initiatives to improve the organization of healthcare systems or articles covering aspects of the orphan drug market. In addition, trends and breakthroughs in genomics, and -omics in general, are not reported unless they bear specific rare disease features.
Find the 2015 State-of-Play report here.
Find the 2014 State-of-Play report here.